Isobel Knight/5
1 notes
Résumé :
Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspec... >Voir plus
étiquettes
Ajouter des étiquettes
Que lire après A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type)Voir plus
Critiques, Analyses et Avis (1)
Ajouter une critique
Un livre théorique expliquant les différents aspects du Syndrome d'Ehlers Danlos (symptômes, diagnostic, rôle du collagène, etc), illustrés ou présentés sous forme de témoignages. L'auteure offre également des conseils pratiques pour les personnes qui en sont atteintes et leurs proches.
Citations et extraits (8)
Voir plus
Ajouter une citation
Indeed it is perfectly natural for you to feel angry and upset about the fact you have a chronic, persistent and permanent health condition that is both life-long and often seemingly invisible to others.
It will always be difficult for those of us who live with unseen medical conditions, especially EDS-HT where the individual looks apparently healthy and well. It is hard to continue deflecting insensitive comments and to have to ‘convince’ someone that you are in pain.
Many recall being taken by their own parents to GP's and other medical professionals where the diverse and non-specific symptoms complained about were 'played down' in significance or worse still discounted as 'attention seeking' or probable 'over-anxious parenting'.
During the middle of the meeting, I felt a sudden surge of heat up to my brain followed by a change in pulse rate and temperature and accompanied by immediate brain-fogging and feeling as though I had been put on "pause".
The most difficult thing for me is not doing loads of stuff when I feel better than normal.
Lire un extrait
Video de Isobel Knight (1)
Voir plusAjouter une vidéo
A Patient's Perspective - Isobel Knight, Author & Researcher
autres livres classés : maladie orphelineVoir plus
Les Dernières Actualités
Voir plus
Quiz
Voir plus
Ecrivain et malade
Marcel Proust écrivit les derniers volumes de La Recherche dans une chambre obscurcie, tapissée de liège, au milieu des fumigations. Il souffrait
d'agoraphobie
de calculs dans le cosinus
d'asthme
de rhumatismes
10 questions
283 lecteurs ont répondu
Thèmes :
maladie
, écriture
, santéCréer un quiz sur ce livre283 lecteurs ont répondu